My LONG psoriatic arthritis story summarized: In 5th grade, I had my first knee surgery. My meniscus was ripped, flipped and separated from the bone. My orthopedic surgeon back then said it was most likely something I was born with and I injured it from dance and softball. But, from that point on it seemed …
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When Ricky White reached out to me asking if I’d like to review his book “Taking Charge. Making Your Healthcare Appointments Work for You”, my answer was hell yeah!. I love reading resources that may be helpful to my community. Doctor’s appointments can be overwhelming and frustrating and I know exactly how that can feel. …
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This year I was privileged with the opportunity to attend the American College of Rheumatology Annual Meeting in DC with The International Foundation of Autoimmune Arthritis. For 3 days, we Facebook Live’d interviews with researchers and non-profits. It was pretty awesome (check out all 20+ videos here!) Julie Croner | Psoriatic Arthritis Patient Leader on …
Hand pain and stiffness is something that I experience on a regular basis now a days. And it sucks. Seriously, sucks. It starts with hand pain and stiffness, then moves up my arm to a tingly forearm and can get all the way up to my shoulder. Somedays, if it’s really bad, I have to …
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It’s been a while since I’ve blogged about my psoriatic arthritis. Mostly because I had been doing so well – I didn’t really have anything that I needed to update you on. But, I have a confession to make. It’s pretty hard for me to say this, but the last few months have been rough. Rough enough that …
This year at Medx ePatient Carly (@CarlyRM) presented a panel on the pain scale and how it doesn’t necessarily transfer over to chronically ill patients. I was one of her test subjects and for 3 months submitted pictures of myself. These pictures were matched up to the pain scale number I was feeling that day (1-10 …
Back in April I went to my ortho for a follow up appointment. During this appointment she identified a new problem that was a result of the AVN. The large part of my femur that is dead/dying is right on the outside edge of the knee joint. The bone is crumbling from the inside out …
I feel like I need to start this post out by saying that I do have I a post started that I need to make a priority to finish about an amazing therapy that I’m doing right now called ‘LifeForce’. I’m going to the Avani Institute in McMurray, Pa for my protocol sessions and have …
Before I went under for my endoscopy, I asked the anesethiologist if I could sign a paper saying they could preform any test they needed to and to not wake me up until they figured out what was wrong. Well, everybody laughed And I was like… No. I’m serious. And again, they took it as …
So I know since I had the flu, I’ve kinda been MIA on the blog. My stomach/whole digestive system has been really bothering me and it’s totally screwed up evvvverythingggggg! Disclaimer: I’m such a girly girl. I hate talking about poop and anything related to it. If you ask my family they’ll tell you how …
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