Sharing my psoriatic arthritis story is something that has been important to me for the last few years. Why? Because in the beginning, I felt alone, with not many options. Learning about other’s stories, and what has helped them (and conversely not helped), really assisted me in getting on a path to managing my condition. …
I get it, not everyone wants to be an advocate for their condition. I won’t lie. It doesn’t pay. . . much, if at all. And it’s emotionally and physically draining. BUT, what I will say, is that it is the most rewarding thing I’ve ever done in my whole entire life. I recently wrote this post …
After screen grabbing my FDA testimony from the hearing held on stem cells, I went back to the Patient-Focused Drug Development for Psoriasis (held by the FDA on March 17th, 2017) to grab a video of my public comment. The quality isn’t the greatest, but you can hear what I said! I just realized I …
In August, I basically had no energy whatsoever and spent the majority of the month in pain. (Read more about my flare up here) In September, I traveled for almost 3 weeks straight. It was a CRAZY month for me. I can’t lie – I was really worried about how my body would hold up. …
Read more “Psoriatic Arthritis Interview With Dr. Feldman and Christina”
Oh the Olympics. Growing up, I remember watching swim meets, gymnastic competitions and figure skating routines with my Mom. But, if I’m honest, I can’t say I was ever fully into the Olympics. They were entertaining for the moment, but they came and went and were just a small blip on my radar. That is …
I was always the type of girl who had a boyfriend. Seriously, from like 15 years of age until 28, I had a boyfriend about 90% of the time. It wasn’t until the last 2 years that I really was forced back into the dating scene and a lot of “shit” was brought up. One …
Read more “5 Dating Tips For Singles With A Chronic Condition”
If you’re a psoriatic arthritis patient, you already know how unfamiliar people are with the disease. I mean, I’m pretty sure there are people in my life who still don’t understand what it is. There are more than a million people in the USA alone diagnosed with the disease, but who knows how many others …
My 23-year-old self (ok, let’s be honest, and my 30-year-old self) was freaking out when I had the opportunity to speak one on one with La La Anthony! Sure, it was in regards to her psoriasis and her new Picture Positivity campaign with the NPF, but AHHH! I WAS PUMPED! After graduating from college, I …
From December 2012 – August 2013 I definitely experienced some of the darkest days of my life. I had to spend the majority of my time in bed because I was so inflamed, my body was so angry at me, and I was in so much pain. I couldn’t put any weight on my left …
Read more “NPF Conference : Even One Person Can Make A Difference”
While I was in Harrisburg, PA for the Arthritis Foundation’s Advocacy Day this year, one of our ‘asks’ revolved around the development of biosimilars. I’d be hard pressed to find an autoimmune patient who doesn’t know what a biologic is, but many of them aren’t as familiar with what a biosimilar is. My first reaction to …
Read more “Biologics & Biosimilars – Do You Know What The Differences Are?”