Gtube – it's just a bad day, not a bad life!

Top 2 tips for packing and getting through TSA with a Gtube Baby

My Top 2 Tips for Air Travel with a G-tube Kiddo

by JulsCaregiving, Chronic Lung Disease, Gtube, It's Just A Bad Day July 16, 2026No Comments

I’m no expert. I’m just trying to share my learnings as a complex medical mama of 4 so others have more information than I did! Packing for vacation looks a little different in our house these days. While everyone else is deciding how many swimsuits to bring, I’m counting syringes. Syringes. Medications. Extensions. Emergency supplies. …

Navigating the Learning Curve of a G-Tube: A Mama Caregiver’s Journey

by JulsChronic Lung Disease, Gtube, It's Just A Bad Day, Pulmonary Hypertension April 1, 2025No Comments

When I became a mom to a baby with a G-tube, I had no idea what I was getting into. It was overwhelming, terrifying, and felt completely foreign. If you had told me before Elle was born that I would be managing tube feeds, troubleshooting leaks, and making complex medical decisions for my baby, I’m …