Navigating the Learning Curve of a G-Tube: A Mama Caregiver’s Journey

by JulsChronic Lung Disease, Gtube, It's Just A Bad Day, Pulmonary HypertensionPosted on No Comments

When I became a mom to a baby with a G-tube, I had no idea what I was getting into. It was overwhelming, terrifying, and felt completely foreign. If you had told me before Elle was born that I would be managing tube feeds, troubleshooting leaks, and making complex medical decisions for my baby, I’m …

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Croner Experience with Zachary's Mission - Pulmonary Hypertension and Chronic Lung Disease post-infectious bronchiolitis obliterans.

Zachary’s Mission Gala – Croner Family Experience

by JulsChronic Lung Disease, It's Just A Bad Day, Pulmonary HypertensionPosted on No Comments

During Elle’s hospital stay, the staff went above and beyond to make our experience as effortless as possible. When we first arrived, the PICU social worker provided us with a bag of toiletries and other useful items that were incredibly helpful. Throughout our time there, Elle also received little gifts and activities to keep her …

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