What Drives Me To Be A Patient Leader #HAWMC
WEGO Health is hosting a #HAWMC during November 2016. What the heck is it and why I’m involved!
WEGO Health is hosting a #HAWMC during November 2016. What the heck is it and why I’m involved!
After screen grabbing my FDA testimony from the hearing held on stem cells, I went back to the Patient-Focused Drug Development for Psoriasis (held by the FDA on March 17th, 2017) to grab a video of my public comment. The quality isn’t the greatest, but you can hear what I said! I just realized I …
In August, I basically had no energy whatsoever and spent the majority of the month in pain. (Read more about my flare up here) In September, I traveled for almost 3 weeks straight. It was a CRAZY month for me. I can’t lie – I was really worried about how my body would hold up. …
Read more “Psoriatic Arthritis Interview With Dr. Feldman and Christina”
(Impatient and don’t want to read the whole post? Just scroll all the way to the bottom to watch the video!) Sometimes I find myself in situations and think, “How the hell did you get here Julie?” Seriously. I mean, to be speaking at an FDA hearing on stem cells? And then I think . …
It’s been a while since I’ve blogged about my psoriatic arthritis. Mostly because I had been doing so well – I didn’t really have anything that I needed to update you on. But, I have a confession to make. It’s pretty hard for me to say this, but the last few months have been rough. Rough enough that …
Oh the Olympics. Growing up, I remember watching swim meets, gymnastic competitions and figure skating routines with my Mom. But, if I’m honest, I can’t say I was ever fully into the Olympics. They were entertaining for the moment, but they came and went and were just a small blip on my radar. That is …
I always get asked about chair yoga and to give examples of postures to complete in a chair. Well here is the first post I’m sure of many about them! Within this post, you’ll find a video sequence of a simple 25 minute practice as well as HealthCentral posts that I’ve written depicting each posture. …
After over 3 1/2 years of being on disability leave, this past March I began to transition back into the working world officially. Prior to my disability leave, my work schedule was crazy! I was go go go, 24/7/365. There was no “pacing myself”. My job didn’t understand that concept, yet they preached we needed …
Read more “Tips For Transitioning From Disability Back Into The Working World”
A year ago, I couldn’t walk without crutches. A year ago, I was in so much pain that I truly was starting to believe that it’d never go away. A year ago, I had to pace myself in everything that I did. A year ago, I just wanted to be “normal” and walk… and perhaps …
Read more “One Year Regenexx Celebration + Platelets Procedure”
A lot of people say they could never stay on the diet I have to because it’d be too hard. Many people say, “oh you have to live life a little!”, “Just eat a cupcake” or “enjoy yourself”. . . But it’s not that simple. Whenever I go out to eat, hell ya I’d rather …