If you could save a fellow patient from delayed diagnosis & potential disability, would you do it?
Donate 60 minutes to research and you can!*
I’ve teamed up with the International Foundation for Autoimmune Arthritis, Sjögren’s Syndrome Foundation, Spondylitis Association of America, the International Still’s Disease Foundation and Lupus UK to help recruit patients to participate in a research study that will investigate current improper identification of early symptoms of six core Autoimmune Arthritis diseases, including Rheumatoid Arthritis, Psoriatic Arthritis, Still’s Disease, Ankylosing Spondylitis, Systemic Lupus Erythematosus, Sjögren’s Syndrome and Juvenile Arthritis, that may correlate with a delay in diagnosis.
If you qualify, please volunteer 60 minutes to report your earliest symptoms and you could help us help millions!
The results from your participation will be used to analyze patient-reported disease onset and cross-reference the data with current symptom publications to identify gaps in detection. If our team can create a better detection model, then patients will experience earlier referrals, diagnosis, and treatment, thus promoting less long-term disability.
Learn more about the study and get the link to participate here: https://storify.com/IFAA/early-symptoms-study.
You CAN make a difference in 60 minutes!
Please use #60MinuteGameChanger and #PatientPower in your posts on Social Media to help spread the word.
If you have specific questions about the study you may email the Project Manager at [email protected].
The deadline to complete the study is August 30th, 2014.
*Diseases in the study include RA, PsA, AOSD, SS, SLE, and AS. Inclusion/Exclusion criteria apply.
Wishing You A Pain Free Day!